There are lots of therapy and treatment options. Sometimes it is a case of not knowing where to look. A good starting point is charities for your actual condition and your GP and medical professionals. Here are some general links and videos, including ideas of endorsed treatments. You may not have thought of that but it may be useful. Always follow medical advice and talk through ideas with your GP and/or Consultant. Also, be aware, there is a lot of misinformation online so look and ensure a treatment follows NICE Guidance that doctors typically follow and check with your health professional. Do give the videos time to load.
The Chartered Society for Physiotherapy UK. https://www.csp.org.uk/
Physiotherapy Exercises. https://www.physiotherapyexercises.com/
Find a Chartered Physiotherapist. Many different specialisms, including neurology, ME, respiratory, learning disabilities, hydrotherapy, pain management, arthritis, back pain and more. You search for someone local to you. https://www.csp.org.uk/public-patient/find-physiotherapist/physio2u
Royal College for Occupational Therapists. Occupational Therapy UK. https://www.rcot.co.uk/
The World Federation of Occupational Therapists. https://www.wfot.org/
Bucks NHS Occupational Therapy Resources covering fine motor skills, gross motor skills, visual perception, handwriting , self esteem and organisation skills for daily life https://www.buckshealthcare.nhs.uk/Downloads/Secondary%20resource%20pack.pdf
NHS Choices Occupational Therapy video:
Functional Electrical Stimulation and mobility difficulties such as Cerebral Palsy, MS and Strokes. http://www.bhamcommunity.nhs.uk/patients-public/rehabilitation/functional-electrical-stimulation. There are a number of FES companies that do devices to help foot drop, for conditions like MS, CP, Stroke. Our experience is with Ottobock that also make prosthetic limbs, orthotics and wheelchairs. Here is a video from WalkAide showing how FES helps walking. https://www.ottobock.co.uk/
Another developer of FES is Odstock Medical, an NHS company working with Salisbury Hospital. https://www.odstockmedical.com/
This video shows what to expect and Linda is using WalkAide.
FES information from the MS Society. A technology helping stimulate muscles and nerves for movement and mobility. https://www.mstrust.org.uk/a-z/functional-electrical-stimulation-fes
Cyclone Mobility. FES muscle stimulation. Cycle bikes for moving paralysed muscles and cycling exercise. Also useful on weak muscles to build muscles and stop degeneration. These are exercise bikes, for example, you may be able to incorporate into physiotherapy. https://www.cyclonemobility.com/product/category/electrical-stimulation/
Animation explaining FES and FES Cycling (FES has NICE Guidelines) and the benefits, for example, if you have had a spinal cord injury or you have weak muscles maybe due to Cerebral Palsy from Berkel Bike
Berkel Bike offers a range of disability cycle bikes for outside use and an exercise option includes hand controls and whole body cycling. Lots of options to incorporate FES muscle stimulation, so you can use the bike and build strength and muscle mass with paralysed muscles and weak muscles. https://berkelbike.co.uk
FES Cycling, to work and strengthen weak or completely paralysed muscles as the contraction is involuntary, also reducing the risk of secondary conditions from being immobile, as an exercise bike for both legs and or arms. You may find this very useful if you have a neurological condition:
Also FEScan be a cycling bike to even race.
NICE (National Institute for Care and Education) set independent medical guidelines on medical treatments and options for all different conditions. It is what the NHS follow, be that GPs or consultants, when considering your treatment and care. https://www.nice.org.uk/guidance
DIAL Disability Information and Advice Line for advice and guidance on all aspects of living with a disability. https://www.dialuk.info/
Hydrotherapy. A look at the therapeutic benefits of (water at a high temperature) hydrotherapy. Hydrotherapy is essentially physiotherapy in water. Because of the support from the water and the high temperature, people are more mobile and the exercise really helps with pain and range of movement (it is also an enjoyable exercise). http://hydrotherapy.org.uk
A list of charity and hospital hydrotherapy options for those based in Buckinghamshire. http://www.musculardystrophyuk.org/assets/0001/7434/South_Central_Muscle_Group_-_Hydrotherapy.pdf
A look at Hydrotherapy in action from this NHS You Tube Video and people's reported experiences.
Spokz People is a social enterprise offering therapy, counselling and support to people with disabilities, helping with managing disability, daily life, pain support trauma work, using EMDT, help with resilience building, confidence, self-esteem, mindfulness, stress, anxiety, mental health, relationships and more. The therapists have disabilities themselves. https://www.spokzpeople.org.uk
IESO Health offer free NHS Approved qualified CBT-style therapy for mental health, such as Anxiety, Depression, OCD, Phobias, PTSD, stress and more. You do the counselling online from the comfort of your own home and learn strategies to overcome difficulties, keeping in touch with your counsellor. https://www.iesohealth.com/en-gb?fbclid=IwAR2qRJk0R3IvE_nTCsHbqbHJgles-DYqBQSuVGt-gGC9R5SupU090H0TiVc
British Association for Behavioural and Cognitive Psychotherapies (BABCP). babcp.com. Provides information on accredited Cognitive Behaviour Therapists, CBT.
IAPT (Improved Access to Psychological Therapies). Find local NHS services. https://www.nhs.uk/Service-Search/Psychological%20therapies%20(IAPT)/LocationSearch/10008
Information about local NHS Therapy in England.
British Psychological Society (BPS). bps.org.uk. Provides a detailed list of Chartered Psychologists.
British Association for Counselling and Psychotherapy (BACP). bacp.co.uk
itsgoodtotalk.org.uk. CBT. What it is as explained by Mind, the Mental Health Charity. A talking therapy looking at cognition's (thoughts) and behaviour to make change.
Othotics are artificial devices, such as splints and braces that support you to improve your gait (walking) or posture. They are used in a range of conditions that affect walking, such as Cerebral Palsy, Stroke or MS as well as Othotics for the spine, like in Sclerosis. They are often ankle supports but the impact on walking, for example, can be HUGE. This video, from the College of Podiatry, explains their use and what is involved. You can get a referral about exploring Orthotics on the NHS if it is felt it may help you.
MS UK offer 50 mins weekly telephone counselling for those with MS. https://www.ms-uk.org/counselling
Chilterns MS Centre based in Wendover, Aylesbury, Buckinghamshire, offers those with MS a range of treatments, such as Physiotherapy, Hydrotherapy, Occupational Therapy, exercise classes, acupuncture, contemporary therapies, counselling, social groups, yoga, speech therapy and more. https://www.chilternsmscentre.org/contact/
MS Trust have a treatment finder that looks at different MS treatment options. https://www.mstrust.org.uk/about-ms/ms-treatments/treatment-finder
The MS Society have gentle exercise workout videos online for people with MS. https://www.mssociety.org.uk/care-and-support/everyday-living/staying-active/simple-workouts-for-ms
They also have exercises aimed at specific symptoms of MS. https://www.mssociety.org.uk/care-and-support/everyday-living/staying-active/exercises-for-ms-symptoms
MS Trust offers tips for being active, Mr Motivator exercise films, option to build an exercise plan and some pilates films. https://www.mstrust.org.uk/life-ms/exercise
The Stoke Association UK have launched aStroke Recovery tool called My Stroke Guide, to help those recovering from a Stroke to be and feel more in control for managing their condition themselves. It helps with understanding a Stroke, taking control of recovery, helping return to tasks, like driving and monitoring progress. It is made up of over 200 videos to help with life post a Stroke, lots of trusted information and an online support community. https://www.stroke.org.uk/finding-support/my-stroke-guide?utm_source=facebook_paid&utm_medium=social&utm_campaign=MSG&utm_term=engagement&utm_content=LALG
Bucks Stroke Support Service, for those of any age that have had a Stroke. Includes help with linking to other support, help with benefits, help returning to work after a Stroke, help with social support and local cafes to meet, help accessing leisure, emotional support and more. https://www.stroke.org.uk/finding-support/bucks-stroke-support-service
Selective Dorsal Rhizotomy information from Scope. An operation for those with Diplegia Cerebral Palsy, more often done on children and even then rarely on offer on the NHS https://www.scope.org.uk/advice-and-support/selective-dorsal-rhizotomy/
Speech Therapy. http://www.speechtherapy.co.uk/index.html. The UKs longest running site for speech and language therapists.
The Therapy Directory. www.therapy-directory.org.uk. This allows you to search for a large variety of different therapies to find a therapist for the type of therapy you need near to you. It includes lots of complementary and alternative therapies.
Horses Helping People. A centre on the Bucks/Herts border offering therapeutic sessions to a wide range of people, including those with emotional issues, anxiety, those with mental health problems, Autism or learning disabilities, those with Cerebral Palsy, those with MS or following a Stroke or head injury. They do sessions to help confidence. They have training courses and also mindfulness courses. http://horseshelpingpeople.co.uk/
Horsewyseis a riding and learning centre in Aylesbury, providing lessons and hacks out as well as Polocrosse. They do a lot of sessions for learning disabilities, Down's Syndrome, Autism, social and emotional difficulties, confidence and physical disabilities. http://www.horsewyse.org.uk/
Equine Therapy (horse) is reported to benefit those with Autism, learning disabilities and mental health issues due to the therapeutic nature of horses. Hippo-therapy is a form of horse riding exercise using Occupational Therapists, particularly focused on balance, core strength, posture and emotional wellbeing. This video is American but explains the issues of Hippo-therapy. One benefit is, it is often highly enjoyable, social and does not feel like exercise. From an NHS perspective, studies are often inconclusive or show small improvements with some groups.
Look at NICE guidelines for the latest studies
Chartered Physiotherapists in Therapeutic Riding and Hippotherapy. https://cptrh.csp.org.uk/
Some individuals report improvement with areas, like gross motor control, balance, posture and wellbeing. More large scale studies are needed.
Headway, South Bucks. Head injury support in Bucks offering social groups and a resource centre. https://www.headwaysouthbucks.org.uk/who-are.html
Headway, Aylesbury. For head injury offering social support groups, practical and emotional support, help with daily living tasks, help with independence, help with learning and general rehabilitation. There is also art therapy. http://www.headwayaylesburyvale.org/our-services/
Buckinghamshire Community Head Injury services helps following a head injury with rehabilitation, like physio, OT or physiological therapy, CBT, speech therapy, communication groups, help with leisure participation, Education, goal setting, the Working Out Programme to help you stay in work or find work and family/friend support services. https://www.buckshealthcare.nhs.uk/Our%20clinical%20services/A%20to%20Z%20of%20clinical%20services/chis.htm
Sensory Service, Buckinghamshire. Based in Aylesbury Sensory Service looks at how hearing loss affects your day-to-day life, offering support, helping with training, adapting and developing daily living skills, mobility training and equipment. https://www.actiononhearingloss.org.uk/how-we-help/support-and-care/sensory-services/sensory-service-buckinghamshire/
Buckinghamshire Mind. Local mental health services for adults and young people. Includes counselling, activity groups, peer support, employment support, training, befriending and more. https://www.bucksmind.org.uk/services/
Conductive Education is a structured teaching and learning approach developed for Cerebral Palsy and used with motor conditions to improve skills, mobility and independence. Used with many conditions, including Cerebral Palsy, MS, Parkinson’s, and a Stroke. http://www.conductive-ed.org.uk
A video explaining Conductive Education, this video is based on a centre in Canada.
Footsteps Centre Foundation is a South Oxford Charity offering intensive rehabilitation physiotherapy to children and young people up to 25 years old. They work with Cerebral Palsy, Epilepsy, other neuromotor conditions, genetic conditions and undiagnosed conditions. They use physiotherapy and specialist equipment, like Spider Therapy to get people upright and practising the repetition so that the posture is more possible and maintainable. The Spider Therapy seems quite a workable 'enjoyable' therapy and this helps a range of motion. It also helps with confidence. https://www.footstepscentre.com/footsteps-foundation/
Kinesiotaping Taping. Taping that help to support and offer stability to muscles and joints to help with range of motion and movement. Also helps soft tissue manipulation and pain. https://kinesiotaping.com/about/
Counselling Directory. Find local professional UK support. https://www.counselling-directory.org.uk
Living with Arthritis, NHS Advice. https://www.nhs.uk/conditions/arthritis/living-with/
NHS Pain Management Advice. https://www.nhs.uk/live-well/healthy-body/how-to-get-nhs-help-for-your-pain/
NHS Pain Management Programmes explained by Health Talk. http://www.healthtalk.org/peoples-experiences/long-term-conditions/chronic-pain/nhs-pain-management-programmes
BACLOFEN TABLETS AND PUMPS. Some conditions that cause Spasticity (muscle tightness) can be treated with a medication called Baclofen. This can be taken in oral form via tablets a few times a day. There can be side effects, like problems with concentration and some people cannot tolerate the drug. It can often be used in conditions like Cerebral Palsy, MS, Spinal Cord injury and a Stroke. If the Spasticity is great and the oral tablets do not work or cause too many side effects, it can be given via a pump as explained by the MS Society. This should reduce tightness, reduce pain and change a person's gait. If taking the tablets, do not just stop without following medical guidance.
Computer Gait Analysis is the study of human motion and walking used for all ages. It measures body movement, mechanics and muscle activity when walking, using a computer to track 3D movement. It helps with identifying problems with walking that can be worked on in physiotherapy and used to get the correct intervention, like Orthopaedics such as brace, treatments or surgery to work out the correct physiotherapy and see their problems, like pressure put on joints that may need support.
The Alter G Anti Gravity Treadmill. This has been added, as it is a clearer piece of technology. I had the fortune of using one of threse at the Bucks Royal Hospital. As I was taking Baclofen and using double FES, my gait (walking) was different. It improved but I had to adjust to walking like this and get used to the walking pattern. This technology supported this as part of my physiotherapy. I also used the FES cycling bikes. The Alter G helps neurological and orthopaedic conditions. It works by reducing your body weight, helping focus on recovery or improvement, without worrying about balance, for example, and strengthen muscles.
Vibration Therapyinvolves standing and doing exercises on a vibrating platform that may improve lower limb strength, reduce joint pain, reduced spasms, better sleep, increased walking/mobility in conditions like Cerebral Palsy and MS. https://www.mstrust.org.uk/a-z/vibration-therapy
British Association of Music Therapy is when trained professionals use music to help someone with physical, emotional, intellectual and social challenges to use music to help overcome these difficulties, like through listening and playing music or writing songs, and doing this to express and explore one's emotions. https://www.bamt.org/
Nordoff Robbins Music Therapy Charity, with centres throughout the UK. https://www.nordoff-robbins.org.uk/music-therapy/
Chiltern Music Therapy. In Chesham, Bucks, this is a Charity that provides a music therapy service from trained music therapists to people with mental health problems, learning disabilities, brain injury, Stroke and physical disability. They offer music mentoring, music lessons, group and individual sessions. They have music production and DJ workshops. https://www.chilternmusictherapy.co.uk
British Association of Art Therapists. A form of psychotherapy counselling, using art media to help explore emotional problems and/or physical disability, learning disability and other medical conditions with a trained therapist. https://www.baat.org/
Talking Therapies forms of counselling and psychological support available on the NHS to help mental health issues, like depression and anxiety, or issues like anger. It can also help with adjustment following health issues and illness like Stroke, Heart Disease, Diabetes, or with pain. You can self-refer or you may wish to talk it through with your GP as well to get their additional support and ideas.
Clinical Psychologist help people manage mental health problems and help them manage their emotional wellbeing, as you can see in this NHS video.
NHS Pilates Information and Video. A form of core strength stretching exercise. https://www.nhs.uk/conditions/nhs-fitness-studio/pilates-for-beginners/
Video Games Therapy is getting global interest because with neurological movement disorders, lots of the outcomes that can be gained through traditional physiotherapy can be arrived though gaming and the patient has more fun so is more committed. There are lots of options and different controls. This video looks at the Wii and a Stroke patient. Lots of neurological physiotherapists now incorporate this for conditions, like a Stroke and Cerebral Palsy and other conditions. If interested, also look at gaming.
Ideas for the use of video games in rehabilitation are just developing as a new form of physiotherapy.
Magic Carpet is an assisted technology sensory tool for therapy and learning used widely in education, but of use to complex need adults and NHS approved. It uses eye gaze, good for coordination, movement, senses, stress, thought (cognition) due to quizzes and games, good for therapy and fun, due to the adaptability of projected activities and images. https://www.sensoryguru.com/magic-carpet-hugely-popular-with-leonard-cheshire-disability-residents/
Yoga with a physical disability is more challenging, but positions can be adapted and it is a nice variation from physiotherapy. In this video, Matthew Stanford explains how he uses yoga following a car accident that left him with a spinal cord injury and in a wheelchair. He has set up a program at a hospital specialised in spinal rehabilitation in Detroit, America, showing how yoga can be very effective, even if you are in a wheelchair.
Disability Foundation provide complementary therapies to disabled adults and children and anyone with a chronic health condition as well as any carer. You need to be a member which, if you have a disability, costs £20 per year to access therapies free. They are based at the Royal National Orthopaedic Hospital, Stanmore, Middlesex. Therapies include, but are not limited to, Yoga, Pilates, Remedial Massage, Therapeutic Massage, Aromatherapy Massage, Acupuncture, Reflexology, Indian Head Massage. http://www.tdf.org.uk/
TENS Machines have inconclusive results, but do help some people manage pain who have long term chronic conditions, like Arthritis, or if you have a physical disability and get pain in your joints. It is a healthier option than pain medication. Always follow medical advice and consult your GP. You cannot use a TENS machine if you have Epilepsy or have a Pacemaker. https://www.nhs.uk/conditions/transcutaneous-electrical-nerve-stimulation-tens/
NHS Speech and Language Exercises from County Durham and Darlington NHS.
Help with Talking from the Association of Speech and Language Therapists in Independent Practiceis a website to find a qualified Speech and Language Therapist working in the UK offering private practice near you. You can also search by age of client to ensure the Therapist is more likely to be suitable for your needs. https://beta.helpwithtalking.com
Relaxation Techniques for MS and other neurological conditions to help with stress that can aggravate symptoms and spasticity. This video is from the MS Trust.
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